Below is an email that was sent to me and I need to share it with everyone. I have been corresponding with this family for a few months and am sadden by the news. I rarely like to post depressing or sad news but my heart is leading me to do this for several reasons.
First, I want to stress the need for more research and education to be dedicated to Carcinoid Cancer. Time and time again when I speak to doctors, foundation and even government officials I am told that this is such a rare cancer that money has to be spent on the more "popular" cancers. Like for any reason we need to describe any cancer as popular. Secondly, I would like to correct the misconception that Carcinoid Cancer is slow going and patients can live for many years with this type of cancer. That may be true for some stages of this cancer, just like breast, lung, liver etc., but in many cases that is not true. I get really frustrated when I hear someone, either a doctor, patient, or just a well intentioned person say, "if you have to get cancer this is the one to get." You can live for up to 5 years with Carcinoid Cancer before it takes your life. Tell that to the family of a 58 year old man who dreams of his future with his wife and first grandchild. Or tell that to my boys who in 5 years from my reoccurance they will be 16, 15, and 14. Tell that to Mark when he is a single father or to the doctor who told me to get my affairs in order because it will take a few months before "it" gets to bad. Next, I want to show that there are many stories that are just as heart aching as mine. Different situations, but just as tragic.
Lastly, I want to pay honor a man who was loved so dearly by his wife that she dedicated her life to him. I man after sending 2 boys to college had planned to retire soon and spend time just being a husband and a grandfather with complete satisfaction. To a man that raised his children to be caring individual which is proven by their career choices as a teacher and nurse. This man fought with all he could against his disease so that he would be around for his first grandson which is due in 4 weeks. Some may say he is just an ordinary man because he was not a famous movie star, well known athlete, well liked professor, famous politician or Nobel Prize winner who died from cancer. But to his wife, two sons, daughter-in-law, soon to be grandson, or anyone else whose life he touched he is a hero. A man that lived with courage and strength. A man that did not give in to this horrific cancer and fought with all he had to the very end. After suffering everyday from this cancer I can rightfully say he is a true hero. Good bye to one of my Carcinoid Posse.